THE MYTHS ABOUT DIALYSIS THAT CHRONIC KIDNEY DISEASE
PATIENTS MAY BELIEVE ARE FACTS
Dialysis for some Chronic Kidney Disease patients
(especially people in Early Stage) who are unfamiliar may seem like a Death
Sentence. For those that have been on Dialysis for any extended period of time
know that this is a myth and 100% FALSE.
However even the more "seasoned" Dialysis
patient, who has conducted treatments for many years, can be fooled by popular
Dialysis Myths.
Myth: As a Dialysis patient I will have to stick to a
ridged Renal Diet and give up all of the foods that I LOVE.
Truth: Nope!
Many long time Dialysis patients settle for bland or excessively strict diets.
You should not; and if you are doing that right now, stop! No, I am not saying,
"Go crazy and eat WHATEVER you want!" That would not be smart. But
you should see your diet as something that changes over time. You should work
with your Dietitian to add food to your diet, make substitutions, change things
that are not working, and more.
Try this: Get a copy of one of your favorite recipes take
it to your Dietitian and ask how you can fit it into your diet. They will be
able to offer you some advice. By eating more of what you want to eat, you will
feel less restricted and be able to live a fuller, better life.
Myth: Dialysis has to hurt, but it's better than being
dead.
Truth: Wrong
again. Dialysis does not have to always be painful. During dialysis you may
feel a pinch when each of the needles go into your fistula. If the needle
causes more than a "pinch" there are skin numbing drugs that can help
such as Lidocaine and EMLA cream. The rest of your dialysis treatment should
NOT hurt. If it does, tell your Nurses and Nephrologists so they can fix it.
Also, talk to your Nephrologists before applying anything to your fistula in
case of allergic reactions or other concerns.
Myth: All I have to do is conduct my Dialysis to feel
better.
Truth: This is
partially correct, that is what makes it so tricky. Dialysis is an important
part of you feeling better once your kidneys fail. You might even say that it
is the biggest part in ensuring you live. What is often missed, however, are
the other VERY important aspects of your life such as diet, taking medications
as prescribed, fluid limits, and exercise.
Myth: Dialysis
will bring my Kidney Function back to normal.
Truth: The unfortunate fact is that once your
kidneys fail, they very seldom get better. Dialysis is not a cure, it is a treatment
that does some of what your kidneys did. You need to incorporate Dialysis into
your life to better manage your health outcomes and enjoy a high quality of
life. Even if you have a Kidney Transplant you will have to manage your health,
so the best time to start is right now!
Myth: People on dialysis can no longer travel
Truth: You can
still soak up the sun, camp, visit family or travel for fun. Just schedule it
with your center in advance. If you are on Hemodialysis you can arrange
treatments at a center at your planned travel destination, and if you are
conducting Peritoneal Dialysis or Home Hemodialysis most centers can arrange for
your supplies to be directly delivered to wherever you are going. Just go talk
to your Social Worker so she/he can help.
Myth: There is too much to learn about Dialysis. It takes
too much to stay informed.
Truth: It is YOUR health and YOUR life, come-on...jump in
the front seat. That is where you should stay. You do not need to know every
single thing about Dialysis, but you should refer to resources and stay in
close communication with your Healthcare Team to ensure you do not miss any new
findings, information or products that can help improve the quality and comfort
of your life. kidneyBuzz.

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